Fibromyalgia Syndrome related E Petition An e-petition regarding Fibro and benefits on the Number10.gov.uk website needs your support.
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Penalties Scrapped for NHS Top Up Fees Patients who pay privately for extra medicines will no longer have their right to NHS care taken away, Health Secretary Alan Johnson announced today.
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Patient UK updates their Fibromyalgia Syndrome information FibroAction is pleased to announce that, following our input, Patient UK has updated their online information on Fibromyalgia Syndrome.
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FibroAction teams up with the Charities Aid Foundation to enable online donations You can now easily support FibroAction by making a secure online donation through the Charities Aid Foundation (CAF).
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Andrew Holman Lecture to be held at Guys Hospital The lecture by Andrew Holman MD will now be held at Guy's Hospital, London instead of St. Thomas' Hospital, London. This alteration has been made at the request of the Fibromyalgia Syndrome clinic at Guy's Hospital.
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ENFA Petition Needs Your Support ENFA and the European Federation of IASP Chapters have joined together to produce a petition calling for a European Union in which the rights of the 14 million people affected by Fibromyalgia Syndrome are recognized.
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Severe blow for millions of Fibro sufferers as European Medicines Agency rejects first drug approval The millions of Fibromyalgia Syndrome sufferers across Europe have this week received a severe knock-back with the announcement that that the Committee for Medicinal Products for Human Use (CHMP) at the European Medicines Agency (EMEA) has rejected the application of the first medicine, Duloxetine hydrochloride, trying to get approval as a treatment for Fibromyalgia Syndrome (Fibro) in the EU.
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US Expert Andrew Holman giving UK Lecture this Christmas FibroAction is delighted to announce that the American rheumatologist and Fibromyalgia Syndrome expert Andrew J. Holman MD will be giving a lecture on Fibromyalgia Syndrome on Monday 22nd December, at St. Thomas' Hospital, London.
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GPs under pressure to not use branded medications A recent poll of GPs has shown that they feel under too much pressure to use cheaper drugs as part of a NHS cost-cutting drive.
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Patricia Fennell joins FibroAction Professional Advisory Board Patricia Fennell MSW LCSW-R, an innovator in the field of the psychology of chronic illnesses, has agreed to become a member of FibroAction's Professional Advisory Board (PAB)
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Patients with long term conditions to get free prescriptions in future Patients with long-term conditions will get free prescriptions in the future under plans announced by the Prime Minister.
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FibroAction Becomes a Registered Charity FibroAction is pleased to announce that it is now registered as a charity with the Charity Commission.
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NHS Choices updates information on Fibromyalgia Syndrome FibroAction is delighted to announce that, last month, NHS Choices updated their website information on Fibromyalgia Syndrome (Fibro).
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Temporary Website disruption possible on Saturday evening The FibroAction website server is having a software upgrade, which may cause some interruption to the FibroAction website service. Any interruption should take no longer than 5 minutes and may occur between 9pm and 11pm BST on Saturday 13th September 2008.
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FibroAction launches an About Fibro Patient Leaflet FibroAction has produced a downloadable printable 'About Fibro' leaflet for patients based on the 'About Fibro' information on this website.
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Fibromyalgia Syndrome on BBC Radio 4 Womans Hour BBC Radio 4's Woman's Hour programme is planning to do a piece on Fibromyalgia Syndrome (Fibro) on Monday 8th September as part of UK Fibromyalgia Syndrome Awareness Week.
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Fibromyalgia Syndrome declaration for European Parliament Five Members of the European Parliament (MEPs) will today present a written declaration on Fibromyalgia Syndrome (Fibro) at the European Parliament.
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Raising Awareness in September September is a busy month for awareness of Fibromyalgia Syndrome (Fibro) and other chronic, invisible and painful conditions.
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FibroAction joins Chronic Pain Policy Coalition FibroAction is proud to announce that it is now a member of The Chronic Pain Policy Coalition.
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Daniel Clauw MD and Patrick Wood MD join FibroAction PAB FibroAction is delighted to announce that Dr Daniel Clauw MD and Dr Patrick Wood MD have both agreed to join the FibroAction Professional Advisory Board (PAB).
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IASP 12th World Congress on Pain The International Association for the Study of Pain®'s (IASP's) World Congress on Pain is being held in Glasgow this week and a number of talks, workshops and poster presentations relevant to Fibromyalgia Syndrome (Fibro) are taking place.
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Dr Jacob Teitelbaum joins FibroAction advisory body We are proud to annouce that Dr. Jacob Teitelbaum has joined FibroAction's Professional Advisory Board.
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Dr Jacob Teitelbaum to visit the UK Renowned Chronic Fatigue Syndrome (CFS) and Fibromyalgia Syndrome (Fibro) expert Dr Jacob Teitelbaum will be visiting the UK next week and will appear on national TV and radio, as well as giving a talk in Glasgow.
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No Medications UK Licensed for Fibro The MHRA, the UK medications licensing agency, has confirmed that there are currently no medications or medical devices currently licensed specifically for use for treating Fibromyalgia Syndrome (Fibro) in the UK.
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Pharmaceutical firms give mixed reports Some of the world's biggest pharmaceutical firms issued a mix of both positive and negative financial reports this week, with restructuring being a common theme.
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Let Us Know Your Awareness Week Plans UK Fibro Awareness Week 2008 will be from 7th to 13th September and FibroAction would like to hear if you are involved with an awareness raising event or activity for the week.
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Doctors to get yearly appraisals All doctors in the UK are to undergo more appraisals in the future, according to plans set out by the Chief Medical Officer today.
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Updated Fibro Info on NHS professionals website The updated information on Fibromyalgia Syndrome (Fibro) that was recently published on the NHS Direct website is also available on the NHS Clinical Knowledge Summaries website.
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USA FDA seeks warning for anticonvulsants The American Food and Drug Administration (FDA) announced last week that it will be seeking to get "black-box warnings" on all anti-epileptic drugs, including Neurontin (Gabapentin) and Lyrica (Pregabalin) which are also used for neuropathic pain and Fibromyalgia Syndrome (Fibro).
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FibroAction helps NHS Direct update Fibro topic FibroAction is delighted to announce that NHS Direct have updated their website information on Fibromyalgia Syndrome (Fibro).
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Software upgrade tonight The FibroAction website is having a software upgrade tonight, which may cause some interruption to the FibroAction website service.
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Fibro at the EULAR Congress of Rheumatology The recent EULAR 2008 Annual European Congress of Rheumatology took place from 11th to 14th June in Paris and 93 abstracts discussing Fibromyalgia Syndrome were submitted to the congress.
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Website Move Completed FibroAction has just completed its move to a new hosting provider with higher bandwidth and the capacity to cope with greater user numbers than our previous provider.
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Professional Advisory Board Launch FibroAction is proud to announce the launch of our Professional Advisory Board.
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FibroActions Useful Links Directory updated The Useful Links Directory on the FibroAction Website has been expanded and now contains more links that may be of use to people with Fibromyalgia Syndrome (Fibro).
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PolkaDotGals Calendar available to preorder The PolkaDotGals Calendar for Fibromyalgia Awareness is now available to pre-order
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Website issues Apologies if you tried to access the website over the week and found it offline
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Website downtime Apologies if the website's downtime today has been an issue for you
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Tried and Tested project launches today The Tried and Tested launch event is today
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FibroAction Website Gets Upgraded The FibroAction website upgrade has finally been implemented!
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WEGO Health do Interview with FibroAction Founder WEGO Health have done a Spotlight interview with FibroAction founder, Lindsey Middlemiss.
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