Newsletter issue We are aware that the recent FibroAction e-newsletter was sent multiple times to some recipients. Please accept our apologies for this...
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Response to Dr Crippen Guardian article mentioning Fibromyalgia On Tuesday March 2nd, the "Dr Crippen" column in the Guardian newspaper had an article about whiplash, in which derogatory comments were made about Fibromyalgia Syndrome (Fibro).
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A Common problem with Registering for the E Newletter We've had quite a few people contact us recently saying they got an error when trying to register for the e-newsletter...
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Compiling a List of NHS Fibro Clinics Do you attend an NHS clinic or course for Fibro patients? If so, we'd like to know about it!
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Support Group Directory updated again The FibroAction Support Group Directory has recently been updated again
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Government Petitions Needing Your Signature A round-up of the petitions on the Number10.gov.uk website that relate to Fibro that need your "signature".
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Petition to get more disabled models in ad campaigns A petition asking high street retailers in the UK to involve disabled models in their advertising campaigns
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Support Group Directory updated The FibroAction website Support Group Directory has recently been updated.
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UK Fibromyalgia Alliance update An update on the proposed UK Fibromyalgia Alliance, following a meeting between FibroAction, Fibromyalgia Association UK and UK Fibromyalgia
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Sorry for the recent downtime Please accept our apologies for the FibroAction website being offline recently.
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FibroAction supports the UK Fibromyalgia Alliance FibroAction are proud to support the UK Fibromyalgia Alliance, a new intiative proposed by UK Fibromyalgia, who produce FaMily magazine.
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Support the Prescription Promise Campaign The Prescription Promise Campaign is calling on Gordon Brown to keep the promise he made in his speech to Labour Party Conference 2008 to abolish prescription charges for people with all long-term conditions.
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UK Fibromyalgia Support Group Directory updated The FibroAction Support Group Directory has recently been updated.
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Disability Benefits update Following the furore over the Government Green Paper, ministers finally confirmed last month that DLA for those people of working age would not be scrapped. However, AA and DLA for the over-65s are still under threat.
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Help us by Sending E Cards this Christmas Save money, save paper and help support FibroAction by sending e-cards for Christmas. FibroAction are one of the charities that can benefit from EveryClick's 'Christmas? Considerate Done' campaign, running for its second year.
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Update on the FibroAction e newsletter Following our problems earlier this year with the e-newsletter, we're still working on improving the system for getting them sent out. If you have registered for the e-newsletter, you should have received one at the beginning of November.
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New Campaign for Yellow Card Scheme The Medicines and Healthcare products Regulatory Agency (MHRA) have launched a new, targeted campaign to increase public awareness of the Yellow Card Scheme.
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Dangers of buying illegal medications online highlighted The Medicines and Healthcare products Regulatory Agency (MHRA) has announced that an international week of action targeting the online sale of counterfeit and illicit medicines has highlighted the dangers of buying such medicines online.
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Warning over unlicensed herbal valium The Medicines and Healthcare products Regulatory Agency (MHRA) this month issued a press release warning people of the dangers of taking unlicensed herbal medicines containing aconite.
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DLA saved for some Health secretary Andy Burnham MP has said that he has ‘heard the concerns and worries about disability living allowance’.
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Government refuses to rule out axing DLA A senior government minister has confirmed to the House of Lords that axing DLA has definitely not been ruled out, despite assurances previously being given by care minister Phil Hope
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New advice on over the counter analgesics containing codeine The Medicines and Healthcare products Regulatory Agency (MHRA) announced new advice on over-the-counter (OTC) medicines containing codeine and dihydrocodeine (DHC) to minimise the risk of overuse and addiction.
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Charity Times Awards 2009 FibroAction was short-listed as Best New Charity at the Charity Times Awards 2009, but unfortunately we did not win on the night.
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West Berkshire Neurological Alliance extends time limit for pain survey The West Berkshire Neurological Alliance (WBNA), of which FibroAction is a member, are carrying out a survey of pain and pain management experiences from people in their local PCT area.
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September newsletter now online The September edition of the FibroAction e-newsletter is now available online.
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UK Fibromyalgia Syndrome Awareness Week September 7-13th is UK Fibromyalgia Syndrome Awareness Week. Will you be doing anything to help raise awareness?
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Volunteer to help FibroAction raise awareness of Fibromyalgia Syndrome FibroAction is looking for more people to join our team of volunteers! We are interested in getting a range of volunteers with various skills, including both people with Fibro and people without the condition.
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Swine Flu and Fibromyalgia Syndrome information The Swine flu pandemic poses a particular challenge to the Fibro community. The following information may be of use.
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Shaping the Future of Care Together Green Paper threatens AA and DLA benefits A Government Green Paper has proposed a number of changes to the way care in the UK is funded and managed, including the possibility of scrapping disability benefits, such as Attendance Allowance (AA) and possibly also Disability Living Allowance (DLA).
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Panorama apologise for The Trauma Industry error The Panorama show have apologised for any distress caused by The Trauma Industry programme incorrectly referring to Fibromyalgia Syndrome as a psychological disorder.
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Breaking News Lyrica appeal refused in Europe FibroAction have just been informed by Pfizer that their appeal to get marketing approval for Lyrica as a treatment for Fibromyalgia Syndrome (Fibro) in the EU has been rejected
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FibroAction shortlisted to win a Charity Times Award We are delighted to announce that FibroAction has been shortlisted to win a Charity Times Award in the Best New Charity category.
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APPG Meeting Cancelled The meeting of the All Party Parliamentary Group (APPG) on Fibromyalgia Syndrome, scheduled to take place this afternoon has been cancelled.
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Ann Keen MP to address meeting of the APPG on Fibromyalgia Syndrome The Parliamentary Under-Secretary of State for Health, Ann Keen MP, will address a meeting of the All Party Parliamentary Group (APPG) for Fibromyalgia Syndrome on Monday.
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Jacqui Mayes Nutrition and Fibro Talk Nutritionist Jacqui Mayes will be giving a talk on Nutrition & Fibro to the Reading Fibromyalgia Support Group on Monday July 13th.
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Events in July Two exciting events are coming up in July: the Fibromyalgia Support Northern Ireland 6th International Conference and Brains, Pains and Gains, a one-day conference on pain and pain management.
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E Newsletter Editor wanted FibroAction are looking for a volunteer e-newsletter editor to take on the role of putting together the monthly e-newsletter
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Follow FibroAction on Twitter tonight from the Times Cheltenham Science Festival FibroAction founder Lindsey Middlemiss is hoping to tweet from the Pain lecture at the Times Cheltenham Science Festival tonight.
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FibroAction founder to speak at pain conference FibroAction founder Lindsey Middlemiss will be speaking at the 'Brains, Pains & Gains' conference taking place on Thursday 9 July.
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Support UK Fibromyalgia Syndrome sufferers by becoming a Friend of FibroAction FibroAction are pleased to announce that applications are now being accepted for the Friends of FibroAction scheme.
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Launch of the Fibro Support Group Guys London A new support group for people living in London or attending the NHS FM Clinic at Guy's Hospital, London, is being launched on Monday.
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Report on the first UK Parliament Debate on Fibromyalgia Syndrome A report by FibroAction founder Lindsey Middlemiss on the first UK Parliamentary debate on Fibro that took place on May 5th 2009.
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Application for a UK NICE Guideline for Fibromyalgia Syndrome is Unsuccessful The application for a NICE Guideline on Fibromyalgia Syndrome to be developed has been rejected by the National Institute for Clinical Excellence (NICE), it was revealed at a parliamentary debate yesterday.
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First UK Parliament Debate on Fibromyalgia Syndrome Initial report on the first ever UK Parliamentary debate on Fibromyalgia Syndrome that took place on 5th May 2009
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Follow the Parliamentary debate on Fibromyalgia Syndrome on Twitter FibroAction founder Lindsey Middlemiss is at Westminster today. Follow her updates on Twitter at http://twitter.com/fibroaction
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UK Parliament Westminster Hall debate on Fibromyalgia Syndrome to take place FibroAction is delighted to announce that the All Party Parliamentary group on Fibromyalgia Syndrome has secured a Westminster Hall debate on Fibro. Unfortunately, the debate is scheduled for Tuesday morning, leaving very little time.
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Response from FibroAction to Lyrica EU Refusal Second blow for millions of Fibromyalgia Syndrome sufferers as European Medicines Agency rejects another drug
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Lyrica refused European Marketing Approval Breaking News: FibroAction has been informed that pharmaceutical giant Pfizer have been refused marketing approval for Lyrica as a treatment for Fibromyalgia Syndrome (Fibro) in Europe.
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Sponsored walk for Fibromyalgia Syndrome A team of people from FibroAction will be doing the Newbury Rotary Club supported sponsored walk on May 10 2009 in aid of FibroAction.
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2009 Fibromyalgia Syndrome Awareness Campaign 1 in 50 FibroAction's awareness campaign theme for the 2009 International Fibromyalgia Awareness Day on May 12th will be "1-in-50" focusing on how many people do not realise that they know someone with Fibro, but that as Fibro affects at least 1-in-50 people in the UK, most people will know someone with the condition.
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APPG on Fibromyalgia Syndrome Meeting On Wednesday 18th March, a meeting of the All Party Parliamentary Group (APPG) on Fibromyalgia Syndrome was held in the Jubilee Room at the Houses of Parliament.
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Telegraph article FibroAction founder Lindsey Middlemiss was this week mentioned in the health section of the Daily Telegraph, as part of an article on self-diagnosis using the internet
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Interested in Journalism or PR Do you have an interest in PR or journalism? Are you passionate about helping to raise awareness of Fibromyalgia Syndrome (Fibro)? We're looking for a voluntary PR coordinator!
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New Number 10 E Petition for Fibromyalgia Syndrome sufferers A new petition has been submitted to the Number10.gov.uk website by a UK Fibromyalgia Syndrome sufferer.
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Looking for help with awareness campaigns Want to help raise awareness of Fibromyalgia Syndrome (Fibro)? Well, we're looking for some people to take part in awareness campaigns this spring.
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VIP Football Tickets up for auction A VIP trip for 2 to Crystal Palace Football Club is being auctioned in aid of FibroAction by the charity auction site BuyOnceGiveTwice
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IBS Patient Expert Heather Van Vorous joins FibroAction PAB FibroAction are delighted to announce that IBS patient-expert Heather Van Vorous has agreed to join our Professional Advisory Board.
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Dr Andrew J Holman MD joins the FibroAction PAB FibroAction are delighted to announce that Dr Andrew J. Holman MD has joined our Professional Advisory Board (PAB).
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FDA Approval for Savella Forest Laboratories, Inc. and Cypress Bioscience, Inc. have announced that Savella (milnacipran hydrochloride), a selective serotonin and norepinephrine dual reuptake inhibitor, has been approved by the U.S. Food and Drug Administration (FDA) for the management of Fibromyalgia Syndrome (Fibro).
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FibroAction Website Survey Help FibroAction to make this website even better by filling out a short survey.
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Merry Christmas A holiday message from FibroAction founder Lindsey Middlemiss
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Send e Cards this Christmas Save money, save paper and help support FibroAction by sending e-cards for Christmas. FibroAction are one of the charities that can benefit from EveryClick's 'Christmas? Considerate Done' campaign.
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Government and Drugs industry cut deal The Government and the pharmaceutical industry have cut a deal to reduce the cost to the NHS of new drugs, it was announced yesterday.
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Fibromyalgia Syndrome related E Petition An e-petition regarding Fibro and benefits on the Number10.gov.uk website needs your support.
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Penalties Scrapped for NHS Top Up Fees Patients who pay privately for extra medicines will no longer have their right to NHS care taken away, Health Secretary Alan Johnson announced today.
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Patient UK updates their Fibromyalgia Syndrome information FibroAction is pleased to announce that, following our input, Patient UK has updated their online information on Fibromyalgia Syndrome.
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FibroAction teams up with the Charities Aid Foundation to enable online donations You can now easily support FibroAction by making a secure online donation through the Charities Aid Foundation (CAF).
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Andrew Holman Lecture to be held at Guys Hospital The lecture by Andrew Holman MD will now be held at Guy's Hospital, London instead of St. Thomas' Hospital, London. This alteration has been made at the request of the Fibromyalgia Syndrome clinic at Guy's Hospital.
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ENFA Petition Needs Your Support ENFA and the European Federation of IASP Chapters have joined together to produce a petition calling for a European Union in which the rights of the 14 million people affected by Fibromyalgia Syndrome are recognized.
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Severe blow for millions of Fibro sufferers as European Medicines Agency rejects first drug approval The millions of Fibromyalgia Syndrome sufferers across Europe have this week received a severe knock-back with the announcement that that the Committee for Medicinal Products for Human Use (CHMP) at the European Medicines Agency (EMEA) has rejected the application of the first medicine, Duloxetine hydrochloride, trying to get approval as a treatment for Fibromyalgia Syndrome (Fibro) in the EU.
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US Expert Andrew Holman giving UK Lecture this Christmas FibroAction is delighted to announce that the American rheumatologist and Fibromyalgia Syndrome expert Andrew J. Holman MD will be giving a lecture on Fibromyalgia Syndrome on Monday 22nd December, at St. Thomas' Hospital, London.
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GPs under pressure to not use branded medications A recent poll of GPs has shown that they feel under too much pressure to use cheaper drugs as part of a NHS cost-cutting drive.
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Patricia Fennell joins FibroAction Professional Advisory Board Patricia Fennell MSW LCSW-R, an innovator in the field of the psychology of chronic illnesses, has agreed to become a member of FibroAction's Professional Advisory Board (PAB)
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Patients with long term conditions to get free prescriptions in future Patients with long-term conditions will get free prescriptions in the future under plans announced by the Prime Minister.
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FibroAction Becomes a Registered Charity FibroAction is pleased to announce that it is now registered as a charity with the Charity Commission.
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NHS Choices updates information on Fibromyalgia Syndrome FibroAction is delighted to announce that, last month, NHS Choices updated their website information on Fibromyalgia Syndrome (Fibro).
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Temporary Website disruption possible on Saturday evening The FibroAction website server is having a software upgrade, which may cause some interruption to the FibroAction website service. Any interruption should take no longer than 5 minutes and may occur between 9pm and 11pm BST on Saturday 13th September 2008.
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FibroAction launches an About Fibro Patient Leaflet FibroAction has produced a downloadable printable 'About Fibro' leaflet for patients based on the 'About Fibro' information on this website.
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Fibromyalgia Syndrome on BBC Radio 4 Womans Hour BBC Radio 4's Woman's Hour programme is planning to do a piece on Fibromyalgia Syndrome (Fibro) on Monday 8th September as part of UK Fibromyalgia Syndrome Awareness Week.
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Fibromyalgia Syndrome declaration for European Parliament Five Members of the European Parliament (MEPs) will today present a written declaration on Fibromyalgia Syndrome (Fibro) at the European Parliament.
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Raising Awareness in September September is a busy month for awareness of Fibromyalgia Syndrome (Fibro) and other chronic, invisible and painful conditions.
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FibroAction joins Chronic Pain Policy Coalition FibroAction is proud to announce that it is now a member of The Chronic Pain Policy Coalition.
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Daniel Clauw MD and Patrick Wood MD join FibroAction PAB FibroAction is delighted to announce that Dr Daniel Clauw MD and Dr Patrick Wood MD have both agreed to join the FibroAction Professional Advisory Board (PAB).
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IASP 12th World Congress on Pain The International Association for the Study of Pain®'s (IASP's) World Congress on Pain is being held in Glasgow this week and a number of talks, workshops and poster presentations relevant to Fibromyalgia Syndrome (Fibro) are taking place.
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Dr Jacob Teitelbaum joins FibroAction advisory body We are proud to annouce that Dr. Jacob Teitelbaum has joined FibroAction's Professional Advisory Board.
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Dr Jacob Teitelbaum to visit the UK Renowned Chronic Fatigue Syndrome (CFS) and Fibromyalgia Syndrome (Fibro) expert Dr Jacob Teitelbaum will be visiting the UK next week and will appear on national TV and radio, as well as giving a talk in Glasgow.
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No Medications UK Licensed for Fibro The MHRA, the UK medications licensing agency, has confirmed that there are currently no medications or medical devices currently licensed specifically for use for treating Fibromyalgia Syndrome (Fibro) in the UK.
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Pharmaceutical firms give mixed reports Some of the world's biggest pharmaceutical firms issued a mix of both positive and negative financial reports this week, with restructuring being a common theme.
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Let Us Know Your Awareness Week Plans UK Fibro Awareness Week 2008 will be from 7th to 13th September and FibroAction would like to hear if you are involved with an awareness raising event or activity for the week.
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Doctors to get yearly appraisals All doctors in the UK are to undergo more appraisals in the future, according to plans set out by the Chief Medical Officer today.
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Updated Fibro Info on NHS professionals website The updated information on Fibromyalgia Syndrome (Fibro) that was recently published on the NHS Direct website is also available on the NHS Clinical Knowledge Summaries website.
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USA FDA seeks warning for anticonvulsants The American Food and Drug Administration (FDA) announced last week that it will be seeking to get "black-box warnings" on all anti-epileptic drugs, including Neurontin (Gabapentin) and Lyrica (Pregabalin) which are also used for neuropathic pain and Fibromyalgia Syndrome (Fibro).
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FibroAction helps NHS Direct update Fibro topic FibroAction is delighted to announce that NHS Direct have updated their website information on Fibromyalgia Syndrome (Fibro).
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Software upgrade tonight The FibroAction website is having a software upgrade tonight, which may cause some interruption to the FibroAction website service.
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Fibro at the EULAR Congress of Rheumatology The recent EULAR 2008 Annual European Congress of Rheumatology took place from 11th to 14th June in Paris and 93 abstracts discussing Fibromyalgia Syndrome were submitted to the congress.
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Website Move Completed FibroAction has just completed its move to a new hosting provider with higher bandwidth and the capacity to cope with greater user numbers than our previous provider.
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Professional Advisory Board Launch FibroAction is proud to announce the launch of our Professional Advisory Board.
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FibroActions Useful Links Directory updated The Useful Links Directory on the FibroAction Website has been expanded and now contains more links that may be of use to people with Fibromyalgia Syndrome (Fibro).
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PolkaDotGals Calendar available to preorder The PolkaDotGals Calendar for Fibromyalgia Awareness is now available to pre-order
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Website issues Apologies if you tried to access the website over the week and found it offline
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Website downtime Apologies if the website's downtime today has been an issue for you
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Tried and Tested project launches today The Tried and Tested launch event is today
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FibroAction Website Gets Upgraded The FibroAction website upgrade has finally been implemented!
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WEGO Health do Interview with FibroAction Founder WEGO Health have done a Spotlight interview with FibroAction founder, Lindsey Middlemiss.
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