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Sep 05
Can you use a dashboard notice to raise awareness?

​Do you hold a Disabled Badge? ​

Fibro has many fluctuating symptoms including long term chronic pain & debilitating fatigue, many of us can only manage very short distances before we notice a rapid deterioration in our symptoms. This usually means we take to bed poorly for a few days to recover!

Many people living with Fibro need to use a Disabled Badge to manage to undertake simple daily tasks like shopping, attending Doctors appointments etc If this sounds like you, why not think about applying for a Disabled Badge under the Blue Badge Scheme​ ? 

There has been recent discussion on our Fibroaction HealthUnlocked Community about Disabled Badges & about raising awareness to the General Public. As many have little to no understanding about Fibro & how hard it can be to live with, hence many wonder why do we need to use a Disabled Badge?

Why not, print out our Disabled Badge Holder(DBH) notice to display? So when you're out & about, displaying this notice we thought this might be a great opportunity to raise awareness about Fibro & FibroAction. The notice is bright to grab people's attention and if just one person finds the information & support they need for Fibro because you've displayed it, it's got to be worth it!

If you would like to display this Disabled Badge Holder notice on your dashboard alongside your disabled badge we would appreciate it. If it makes a small difference & just one more person understands Fibro a little more it all helps!

Please print the Disabled Badge Holder notice below & continue to help us raise awareness of Fibro.

FIBROACTION DISABLED BADGE HOLDER.pdf

Invisible illnesses cannot be seen, therefore we need to encourage understanding by using written or spoken word. Let's hope this small jesture can help increase knowledge of Fibro and gain support for our cause.

Sep 04
Can you picture this?
​Thunderclap campaign for UK Fibro Awareness week

Fibro can have more an impact on patient’s lives than many, far more well-known conditions, such as Rheumatoid Arthritis. However, the aim of specialist treatment for Fibro is to try and ensure that patients lead as normal a life as possible. Without treatment, many people with Fibro end up disabled and unable to work or enjoy their life in the way they want. Raising awareness is therefore very important to a very large number of people.

Please show your support by changing your Facebook, Twitter, HealthUnlocked and Tumblr account to our FibroAction covers or adding these images to your blog, download below;

Twitter cover.jpg

Facebook Cover.jpg

 

 
Doing so will help us to raise awareness of Fibro & it's debilitating symptoms to others within the UK. Using our 'Can you picture this?' campaign covers during UK awareness week asks people to think about people living with Fibro & it's symptoms on a daily basis. With approximately 2M people in the UK with Fibro others gaining more understanding is important as so many people are affected by this condition. Why not also ask others to change their covers by changing your status or tweeting the following?

Facebook

Do you have Fibromyalgia? Do you have a family member with Fibro? Why not support the FibroAction campaign 'Can you picture this? Debilitating Pain, Fatigue & other symptoms every single day? by changing your cover for UK #Fibroawarenessweek 6th-14th Sept 2014

Twitter

Do you have Fibro?Know someone with Fibro? Why not support our campaign 'Can you picture this? by changing your cover UK #Fibroawarenessweek

Of course you can also help by adding your support to this Thunderclap campaign as it will spread the word during this awareness week. Whatever you do - we appreciate your support of this campaign & FibroAction

Can you picture this? - by supporting our campaign Thunderclap will send our message below;

Can you picture this? Debilitating Pain, Fatigue & other symptoms every single day? UK Fibro Awareness week 6th-14th Sept 2014'  on your Twitter account on Sunday 14th September 2014 the end of Awareness Week!

Please help us gain 100 supporters over the next 10days to make this tweet happen at 6.30PM on the 14th September 2014, so please spread the word & encourage others to support this Thunderclap campaign. 

Here's the link https://www.thunderclap.it/projects/15938-can-you-picture-this-fibro?locale=en

Please support with Facebook, Twitter and Tumblr :)

Thank You again for #supportfibroaction




 


 

Sep 04
FIBROMYALGIA AWARENESS WEEK 6th - 14th September

Get Involved!

There are several ways that anyone can spread awareness about fibromyalgia. Below are some more popular, but if you have one of your own and would like to share it with us, please do so!

  • Awareness wristbands. These lovely yelow and purple wristbands are the easiest way to rasie awareness and a great conversation starter. We have lots to sell and they are also a great fundraising tool.
  • Raise awareness and funds at the same time while having fun and doing what you enjoy! We use Virgin Money Giving online fundraising platform where anyone can raise funds for us by doing anything, from scuba diving to coffee mornings. In just a few clicks you can set up your own fundraising page  HERE
  • For more ideas and tips on fundraising please visit our 'Get Involved' page  or contact us directly.
  • Talking to your GP surgery. Often GP surgeries, hospitals and other healthcare providers will display our information leaflets. You can talk to your local provider and they or you can request information leaflets from us.
  • Volunteer for us! We have a number of exciting volunteering roles available, from trustees, social media volunteers, webmaster, welfare and health related fields advisers, fundraising roles etc. Find out more HERE

 

Sep 03
Welcome to our new website!

​FibroAction has launched a new website and whilst it is still a work in progress, we now have a much easier ability to update and maintain content whilst keeping all the great, evidence based, information you've been used to at your fingertips.

 

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